Caring for children, teenagers, and adults with Primary Immune Deficiencies (PID) by providing financial, emotional, educational, promotional, advocacy, and specialist medical support.
The Immune Deficiency Foundation of Australia (IDFA) is dedicated to supporting people of all ages affected by Primary Immune Deficiencies (PID), their families and health care team.
IDFA is a non-profit organisation and a registered charity. It was formed in 2005 with support from the IDF/KIDS foundation of New Zealand which was founded in 1987. IDFA is part of the Immune Deficiency Foundation Asia-Pacific Alliance. IDFA has the support of leading Immunology health professionals both in Australia, New Zealand and Internationally.
One of the Foundations' primary aims is to raise awareness of primary immune deficiencies within both the general and medical communities. We do this by providing written materials, seminars and the resources of our medical panel.
Being diagnosed with a PID can be an overwhelming experience. Our registered patients both children and adults have a variety of health issues. Many struggle to make life as normal as possible within the restrictions placed on them by their health. Caregivers also have needs that are important to be recognised. We have found that with the support and understanding of people who have experienced similar problems, we can make it through the hard times and enjoy the good times.
A future where Primary Immune Deficiences (PID) are diagnosed early, communities are aware of the signs and symptoms of PID, and those affected by PID feel supported.
Supply information and resources to promote an understanding of Primary Immune Deficiencies by linking members, their families and medical teams.
Courage - PID can get you down but we get back up together. Strength - Sometimes, just getting through the day can be tough. We understand. Engagement and Collaboration - We seek to involve PID affected individuals, families, medical staff, and the wider community. Determination - Our members, volunteers and staff work tirelessly to give those with PID a better quality of life. Our Members - we can all learn something from someone, and those affected by PID have a story worth listening to. Goals Promote an understanding of primary immune deficienicies within both the general and medical communities. We will do this through: Awareness - We work to increase PID awareness in the general and medical community. Membership - We acknowledge that unity is strength and our aim is to reach all Australians with PID. Advocacy - We will support and act for our members and their families. Communication - We will continue to develop and maintain our communication with members, their families, our stakeholders, partners and key alliances.
Dr Matthew Cook at the IDFA National Patient Conference
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PID children and their families enjoy Sea World.