Patients » Support Services

Services

Free counselling service
Regular newsletters
PID information specific to PID condition
Matching Members and their Families with others who have the same or similar condition
Member forum
Facebook Group for Adult members and Parents
Livewire Group for Children between 10 - 20
Advocacy support regarding medical services affecting PID patients
Access to medical and scientific papers and panels
Advocacy for immunoglobulin supply and safety
IDFA patients can be offered information regarding genetic testing
Free PID patient registration to our International PID network
Invitations to State Patient Meetings and bi annual IDFA National Conference

Emotional Support Services

The Foundation offers various means of Emotional support that can make a real difference to patients and families. Our Support Services Officer is available by telephone to offer free counselling services to members. IDFA Support Services can be accessed online by e-mailing support@idfaustralia.org or by calling freecall 1800 100 198, our Support Officer will call you back to confirm a suitable time.

We can also provide contact with other patients and families; this might be in a group situation such as patient events we offer around the country, or on a one to one basis as in family matching where we try to connect patients/ families facing similar conditions or circumstances.

When dealing with rare medical conditions these opportunities to share questions and experiences can make a huge difference to how a family can cope with a new diagnosis.

Take a look at the patient information and education program material also offered.

This list of services will expand as these divisions are established and further funding becomes available.